This month, as we observe Cerebral Palsy Awareness Month, I find myself reflecting deeply on my own journey with this condition. Just a few months ago, I underwent hamstring release surgery on my inner thighs, knees, and left arm and elbow. For the first time, I received Botox injections to aid my mobility. The results have been nothing short of miraculous. I can now open my left hand without pain and stand without feeling tightness. For the first time, I feel free in my own body—a sensation I had never experienced before.
Throughout this journey, I’ve come to understand what cerebral palsy truly means to me as a 29-year-old living with this often misunderstood condition. The words that come to mind are **strength and perseverance through God’s will**. Without God and the unwavering support of my family, especially my mom, I wouldn’t be where I am today. She has been my biggest advocate, taking me to countless doctors’ appointments and orthopedic visits until we found the right specialist. Even at 29, I still need her support, and I am eternally grateful for her.
Lying in bed, wearing a cast that forced my hand open for the first time, I experienced excruciating pain. Yet, in those moments of pain, I realized the true meaning of strength. It’s about overcoming challenges and obstacles and gaining a beautiful perspective from them. That’s what Cerebral Palsy Awareness Month is all about—celebrating stories full of diversity and hidden lessons.
There are days when cerebral palsy feels like the most tragic thing that could happen. I’ve had many such moments, especially during midnight bouts of pain, confiding in my aunt and my fiancé. But I’ve learned that it’s okay to feel this way. It’s all part of the journey towards a beautiful destination. This month, I’ve learned that cerebral palsy is full of surprises. Each day brings new lessons and encounters with people who change our lives.
As I anticipate my next surgery for my hip, I am filled with hope. This journey has taught me to embrace every chapter, no matter how unexpected. My story, like many others, is one of resilience and faith. It’s about living the journey, embracing where we want to go, and trusting in God’s strength and guidance.
Cerebral palsy tells a unique story within each of us. It’s up to us to decide how we embrace these chapters and teach, educate, and motivate others to conquer their fears and obstacles. Life is an adventure, and every day is a new opportunity to tell our story. Things happen unexpectedly, but they make us better people. Adulting with cerebral palsy makes life more interesting. It’s okay to have bad days and still go on an adventure. The world doesn’t define us; we define ourselves.
The people we meet and who are in our lives are there for a reason. Appreciate them, both the good and the bad. There’s always a destination we’re heading to each day we decide to live. Cerebral palsy does not stop us from living; the only thing that can stop us is ourselves. It’s like reading a chapter book—you never know what you’re going to get, but it’s the best book you could read.
Lastly, live your life the way you want. Be thankful for the journey and the people who support you. I am incredibly thankful for my mom, the cerebral palsy community, my mentors and inspirations like Pastor Justin and his wife Tori, my favorite authors, Reverend Joseph Holman, my wonderful fiancé Cody Mcwhorter and his family, and my former teachers Mrs. Vanhorn and Dr. Binsgo.
This Cerebral Palsy Awareness Month, let’s remember that our stories and meanings may differ, but it’s crucial to come together and spread awareness. The world needs to know about our beautiful, diverse community. Through my upcoming ministry, Able By Grace Ministry, and my writing, I aim to represent and advocate for those with cerebral palsy.
Life is an adventure, full of surprises and lessons. Embrace it, live it, and trust in God’s plan. Together, we can make a difference and change the world’s perspective on cerebral palsy.
